ARCVic History
In Brief - Timeline
In 1987 the organisation commenced as the first OCD Support Group in Victoria, and was incorporated in 1992 as the Obsessive Compulsive Disorder Foundation of Victoria. In 1995, the organisation extended its services to all the anxiety disorders, and changed its name to the Obsessive Compulsive and Anxiety Disorders Foundation of Victoria (OCADF). In 1996, the OCADF was recognised by the State Government as the peak organisation in Victoria providing support services to people and families living with anxiety disorders and granted recurrent funding as a Mutual Support & Self Help program within the Psychiatric Disability Rehabilitation and Support Services sector. In 1999, the Anxiety Recovery Centre Victoria (ARCVic) was registered as OCADF's business and promotional name. In 2003 the OCADF moved to its own independent premises in the eastern region of metropolitan Melbourne and set up the central premises of the Anxiety Recovery Centre.
The History
This is just the 'bare bones' of the story of ARCVic's history and growth since 1987. The History will be updated from time to time as information about ARCVic's past is gathered from the archives, Newsletters and Committee minutes. We would welcome any contributions from past Committee members, volunteers and members who would like to add a personal perspective to the History, or share a story about a particular event - send to arcmail@arcvic.com.au.
We are keen to include the names of all the people who were part of ARCVic's history - Committee of Management members, volunteers, friends and supporters, as all deserve full recognition for their extraordinary work in establishing this organisation, but we need to contact everyone individually to obtain permission to publish the names, so this will also take some time before everyone is acknowledged. At this stage, no names are included, apart from professionals and staff, and current Committee members and volunteers who have given permission for their names to be included.
Eighteen years ago a group of people with obsessive compulsive disorder and carers met in the kitchen of one of their homes and formed the first OCD support group in Victoria. Each one of those people had been suffering alone with their disorder for many years, and as they shared their stories with each other - stories filled with struggle and fear, and vain attempts to find support, information and treatment, it became clear to them just how important a self-help and support group would be in helping the thousands of other people in Victoria who were living with this disorder. They knew from years of experience that isolation, and alienation from others was a big part of their suffering, and that by joining together they were no longer alone, and could share experiences, ideas, feelings, information, strategies and hope that would help each one and each other. With the assistance of the Executive Officer of the South Australian OCD Support Group and members of the Mental Health Foundation, these people established their group and a Committee, and began the process of setting up a telephone helpline and a newsletter so that they could reach out and support other individuals and families affected by OCD.
There are many people who contributed to the growth of the support group and the organisation in those early years - with very few resources, just strong dedication and belief in their mission to help fellow sufferers and carers. In just three years they had set up two support groups, a newsletter, a telephone answering service, regular educational seminars, and were actively involved in lobbying for funding, networking with professionals and promoting the Group.
A brief overview of the most important achievements of the organisation's development over the next 18 years follows. Each year presented new challenges - organising national conferences, developing new support and educational services, transforming the Support Group into an independent and incorporated Foundation, extending our mandate to include all the anxiety disorders, organising national conferences, developing networks and partnerships with other organisations and professionals, lobbying for funding and so on.
ARCVic Highlights and Achievements: 1987 - 2005
- 1987 - first Victorian OCD Support Group; auspiced by the Mental Health Foundation. Committee of Management initiated - consumers, carers and professionals represented. Support group established in Camberwell.
- 1988 - first OCD Support Group Newsletter produced. By 1990 the mailing list was over 100 people.
- 1989 - regular educational seminars started.
- 1990 - secured a grant from the State Government to set up an OCD Telephone HelpLine. Educational seminars now running monthly. Seminars presented by many professionals on topics about OCD, anxiety and depression. The monthly seminars continued for over 10 years and were attended by over 6000 people. Second support group set up in Frankston.
- 1991 - Stegley Foundation grant - Administrator employed - 1 year, 10 hrs p/w (appointed - Mr Tim McCarthy). Telephone Information, Referral & Counselling Service Coordinator - Voluntary Position (appointed - Ms Kathryn I'Anson).
- 1992 - OCD Support Group became Incorporated (Associations Incorporation Act 1981), and changed name to OCD Foundation of Victoria (Inc.), to reflect growth of support services for people with OCD and carers, and role as a central planning and resource centre for metropolitan and country OCD support groups. First Information kits developed. ANZ Trustees grant - Coordinator employed - 1 year, 16 hrs p/w (appointed - Ms Kathryn I'Anson).
- 1993 - 1st Australian Conference on OCD - 'A Hidden Disability'.
30 April - 1st May 1993, Grand Hyatt, Melbourne. Organised and hosted by OCD Foundation of Victoria. Scientific Program Convenors - A/Professor John Tiller, Dr Don Jefferys. International Speakers - Dr Jeffery Schwartz, UCLA Department of Psychiatry & Biobehavioural Sciences, UCLA School of Medicine, Los Angeles, California USA. Dr John March, Department of Psychiatry, Duke University Medical Centre, Durham USA. 10 Victorian Speakers, and 6 Interstate Speakers. 516 Registrants. Conference Proceedings Book of all Scientific Papers Published. Further development of support services and groups. - 1994 - National Mental Health Project Funding (Innovative Grants Program)
2 years - for development of state-wide self-help network, telelink groups and support services. Project Manager F/T (appointed - Ms Kathryn I'Anson), Admin.Ass. P/T (appointed - Ms Judy Bowen and Mrs Lois Van Dyk). Customised Training (with LifeLine) for voluntary telephone counsellors - launch of OCD HelpLine (officially launched by Robert Doyle MP, Member for Malvern). HelpLine Service available for direct calls Tuesday - Thursday. Training Seminars for Support Group Leaders and Resource Manual for Leaders developed. Development of support groups, information kits and other services. Support Groups set up in East Bentleigh, Ballarat and Wodonga. - 1995 - Conference - Anxiety Disorders in the '90s: A Time for Optimism.
3rd & 4th March 1995, Grand Hyatt, Melbourne. Organised and hosted by OCD Foundation of Victoria. Scientific Program Convenors - A/Professor John Tiller, Dr Don Jefferys. International Speakers - Dr Michael Jenike, Associate Professor of Psychiatry, Harvard Medical School, Charlestown MA USA. Dr Steve Rasmussen, Brown University Medical School, Providence, RI, USA. Dr Jonathan Davidson, Dept Psychiatry & Behavioural Sciences, Duke University Medical Centre, Durham NC USA. 38 Victorian Speakers, 5 Interstate Speakers. 530 Registrants. Conference Proceedings Book of all Scientific Papers published.
Annual General Meeting 17th September - extended charter of OCD Foundation to include all anxiety disorders and changed organisation name to Obsessive Compulsive and Anxiety Disorders Foundation of Victoria (Inc.). By September 1995, 19 Support Groups established, including groups for Trichotillomania, Children with OCD and Parents, Social Groups, Panic & Anxiety, and Social Phobia. Two new voluntary telephone counsellors trained - OCD & Anxiety HelpLine extended to five days p/w. Seven training workshops run for support group leaders. - 1996 - Conference - 1st Australian Summit on Social Anxiety Disorder: Emerging from Social
Phobia.
5th & 6th July 1997. Hotel Sofitel, Melbourne. Organised and hosted by the OCAD Foundation of Victoria. Scientific Program Convenors - A/Professor John Tiller, Dr Don Jefferys. International Speakers: Professor Stuart Montgomery, St Mary's Hospital, University of London, UK. Ms Jerrilyn Ross, President, Anxiety Disorders Association of America, Dr Jonathan Davidson, Dept Psychiatry & Behavioural Sciences, Duke University Medical Centre, Durham NC USA. Guest Speaker - Mr Campbell McComas. 10 Victorian Speakers, 4 Interstate Speakers. 320 Registrants. Conference Proceedings Book of Scientific Papers published.
Trichotillomania Symposium: Meeting the Challenge. 9th March, 1996, Nunawading Arts and Entertainment Centre. 55 registrants.
A Booklet titled, "Over & Over & Over Again: A Guide to Obsessive Compulsive Disorder for people with OCD and their families", was written by Kathryn I'Anson, Director, and produced by the OCADF.
The OCADF developed a project, in conjunction with the Directorate of Education - North West Region, to set up a series of educational seminars for school personnel on Obsessive Compulsive Disorder: Identification and Management in the School Setting. First Seminar held on 26th November, 1996. Attended by 75 School Personnel.
Nov 1996 - OCADF successful in obtaining recurrent funding from the Victorian State Government. Recognition of OCADF's role and function as a mutual support & self-help service within the Psychiatric Disability Rehabilitation and Support Services sector. - 1997 - Publication of Resources Kit for School Personnel on OCD. Setting up of four new
support groups in the Sunraysia region.
First OCD & Anxiety Disorders Week, organised and hosted by OCADF - 2nd - 8th November 1997.
OCADF joined as a member of the Carers of the Mentally Ill Network, and helped to organise the 2nd Carers of the Mentally Ill Conference, held on Saturday 22nd March 1997.
Kathryn's booklet on OCD was revised and expanded, and published as a book - 'Nine, Ten, Do It Again: A Guide to Obsessive Compulsive Disorder for People with OCD and their families'. - 1998 - 2005
During the next several years the OCADF further developed and extended its services, including recovery programs, a pen pal network, family and carer programs, early intervention programs and a more extensive community education calendar. In 1999 the OCADF took on a new business and promotional name and became known as the Anxiety Recovery Centre Victoria (ARCVic). Some time and energy was put into building partnerships and networks within the mental health sector.
We can indeed be proud of what we achieved, especially considering our limited financial resources. Throughout the organisation's development, it has remained strongly grounded in principles of self-help, community and empowerment, and continues to be run and managed by people with anxiety disorders and carers. This shared purpose - of the Committee Members, volunteers and staff has been, and is, an exceptionally strong bond that inspires us to work together in a spirit of cooperation and mutual support and respect, and directs our efforts always to maintaining and improving our services, rather than becoming enmeshed in the politics of the field in which we operate or disillusioned by the continued poor availability of specialised treatment services for anxiety disorders in the public mental health system.
Since that first support group meeting, more than 3000 support group meetings have been held in Victoria, there have been over 100,000 contacts and service use, and over 50,000 information kits have been mailed out.
The vision that the first members had of a dynamic and growing support network that would extend throughout Victoria has been achieved - and continues to grow. It has been particularly exciting to see several of the support groups around Victoria becoming a dynamic part of their local communities - making important connections with mental health centres, community organisations, general practitioners and local businesses, and thereby promoting awareness of anxiety disorders and the needs of affected individuals and their families.
ARCVic has developed primarily through the hard work and commitment of the Committee of Management members and the many people who have volunteered their time and talents to assist ARCVic. We are most grateful to everyone who has been a part of our team, for supporting this important service with their extensive experience, skills and knowledge.
And to all our members and service users, we thank you for your involvement in our work, for sharing your experiences, ideas and views, and for supporting and caring for each other. Our hope is that each year will bring new hope of greater opportunities for recovery, for each person with an anxiety disorder, and that ARCVic will continue to be a dynamic self-help and support network which actively works towards fostering and fulfilling this hope.
